https://www.wired.com/story/ho...adgets%20like%20Bose's%20SleepBuds%20II.

When the crickets get in my ear I know to drink water with Gatorade to help fend off a coming vertigo attack.
Having tinnitus full time would make me crazier.

quote:

They also suspected the auditory nerve but found that when you sever or cut the nerve, tinnitus gets louder, not softer.

OMG I hate to think how they came by this knowledge.

quote:

Originally posted by ShiroKuro:

quote:

They also suspected the auditory nerve but found that when you sever or cut the nerve, tinnitus gets louder, not softer.

OMG I hate to think how they came by this knowledge.

Yikes!

Going on three years now, 24/7.

I sleep with the sound of a bubbling Brook and have hearing aids that play pink noise during the day. Some relief there but no cure.

I have a slight hearing loss at the same frequency as my Tinnitus. Not noticed by me but documented with testing.

I’m thinking a Jimi Hendrix concert in 1968 a likely culprit.

No cure.

https://fox8.com/news/family-s...know-about-the-link/



Sux.

Jf

Well over 25 years for me. It started right after 45 minutes of a dentist planing down my two upper left molars. The ringing is the frequency of a dental drill.

I can ignore it most of the time. Like the article, if I pay attention to it, it seems louder and more annoying. The most maddening is sitting in a quiet forest or a snowy place that should be silent. I don’t hear silence any more, I hear the damn ringing.

I talked to a malpractice attorney a few months after it started. Since I grew up listening to loud music, I frequently drive with the window down, and worst of all I ride a motorcycle, he thought it would be very hard to convince a jury or anyone that it was certainly caused by the dentist.

I read the article. Im sorry to say there was very little new information in there and nothing really helpful. Thanks anyway.

I have some hearing loss, too. The thermometer we got beeps when it’s ready. I cannot hear it. It’s the same frequency as my tinnitus.

quote:

Originally posted by pianojuggler:
Well over 25 years for me. It started right after 45 minutes of a dentist planing down my two upper left molars. The ringing is the frequency of a dental drill.

I can ignore it most of the time. Like the article, if I pay attention to it, it seems louder and more annoying. The most maddening is sitting in a quiet forest or a snowy place that should be silent. I don’t hear silence any more, I hear the damn ringing.

I miss silence so so much.


Jf

I have tinnitus too. As to why? ...

Pick one:

I've had more than one concussion, one which resulted in post-concussive syndrome. While living in Japan, I had several years where I had middle ear infections in one or the other ear over and over again, at one point it was so bad my eardrum burst (that was, btw, terrifying). I have some hearing loss from that apparently. And loud concerts and nightclubs in my 20s...

My tinnitus ramps up when I'm tired, it changes and gets worse when I have a migraine coming on...

There's more, but mainly, it's my constant companion.

I had mild tinnitus for years. Then a few years ago it suddenly became intense and pulsating, along with reduced hearing. I went to a local ENT who told me, oh, you just need hearing aids.

Being unsatisfied, I went to a specialist in Manhattan who diagnosed an acoustic neuroma, and said if I’d seen her within a week of the onset, steroids could have helped me.

So here I am with hearing loss, which curtails some of my music activities, and it’s getting worse. Apparently a breakthrough Covid infection can make your hearing worse. This is a Covid effect that is not often discussed.

I had no idea it was so common.

Yikes!

I've had it for 10+ years. Much worse in the left ear - a constant tone with very few warbles.

Generally I'm able to ignore it. But I agree I miss the sound of silence too.

quote:

Originally posted by RealPlayer:
I had mild tinnitus for years. Then a few years ago it suddenly became intense and pulsating, along with reduced hearing. I went to a local ENT who told me, oh, you just need hearing aids.

Being unsatisfied, I went to a specialist in Manhattan who diagnosed an acoustic neuroma, and said if I’d seen her within a week of the onset, steroids could have helped me...

PSA
A few years ago, I suddenly (completely) lost hearing in my left ear. Was talking to son on cell phone when the phone failed, and I *cusswords* complained about my brand new phone failing already!! X&%#?@*

Then I realized the phone was fine, it was my ear that had failed. And only the left one.

Luckily, son (who has consulted various ENTS about HIS tinnitis) knew to advise me it was an emergency, and that I needed steroids.
Got in immediately with PCP who scheduled me with audiologist who confirmed, I had lost all hearing in that ear.

PCP prescribed prednisone after confirmation, but I was unable to see a local ENT as there were none available in town. (*typical* ) Decided the PA, nice as she was, wasn't expert enough for the situation. (She said it was an occasional occurrence, and a mystery in the ENT field). I called Johns Hopkins (3 hrs away) and the ENT triage person got me in the very next day, recognizing it was indeed an emergency.

ENT doctor concurred about the prednisone and also injected my eardrum with steroids (not the most fun I've ever had). Repeated after a week.

Two weeks later I was retested and my hearing had completely returned. They said they had never seen such a dramatic cure. I'm so grateful! (Later, I had a brain MRI to check for a neuroma - negative.) It seems it might have been a virus, head injury, or ye-old idiopathic. It was VERY hard to function meanwhile - the worst was when I misplaced my phone, or even just got a call from "somewhere". It was impossible to locate the ring - took me hours several hours each time. (We really need that echolocation function!)

The deal is, it happens (for some reason) when the acoustic nerve gets inflamed, kind of stuck between one of those teensy ear bones. If the swelling isn't immediately relieved (by steroids) the hearing loss DOES become permanent because the nerve dies.

Whew!

Apparently, there are many tragic stories of people who get this mysterious hearing loss (usually one-sided), and learn too late about the need for steroids, thereafter permanently losing hearing in that ear. The patients are simply crushed when they learn it's just too late. (They think it's a "Cold in the ear" - feels a bit like water in the ear, plus the deafness. But even a few days can make all the difference!

Perhaps that's something of what happened with you.

Yes, Amanda this is very similar to what happened to me. I am so happy you recognized the severity of it and were able to get appropriate help in time!

I got help too late and it reduced my hearing. It recently became even worse in that ear, so I just had an MRI the other day which will confirm if the neuroma has grown or if the new hearing loss is due to Covid or something else.

If the neuroma is getting larger, they can do targeted radiation to stop it from growing. Or they could just surgically remove it but then my hearing would be completely gone on that side.

quote:

Originally posted by ShiroKuro:

quote:

They also suspected the auditory nerve but found that when you sever or cut the nerve, tinnitus gets louder, not softer.

OMG I hate to think how they came by this knowledge.

Should post Suicide Help line along with this remark (trigger), but I've heard about more than one person who've done themselves in because of severe tinnitus, one because of precisely the scenario described here. (Their auditory nerve was severed, which instead of relieving their tinnitus, made it much worse.)
WHAT a nightmare, to come to after that supposedly palliative surgery!

G-D, I hope and pray all ENTs are aware of this phenomenon by now - that severing the auditory nerve not only doesn't help, it makes the troubling tinnitus much worse.